My cancer is still very treatable. Nothing has spread to major organs. I still do not feel pain from my cancer.
My trial medicine stopped working, a lymph node in my chest has gotten bigger. That is significant enough that that will take me off the trial. My options are chemo. I don’t know which chemo drug I will do yet. I may lose my hair (again), and feel sick and tired because of chemo and have to get poked by needles because all chemo options are intravenous.
The big ole nasty drug company (ASTRA ZENECA) is not interested in researching the PARP drug (my clinical trial drug) for people like me. (People like me means BRCA 1 or 2 positive) because we’re in the minority (only 5% of the population apparently. Gosh, I always knew I was special, but I’m extra special!). They want to maximize drug profits. Hey we’re in recession, right? So that means in financial terms it is much more profitable to focus their research on finding a drug that all breast cancer patients can use, not just people with genetic mutations. The bottom line, drug companies don’t always care about helping people. Enraging, isn’t it? Apparently the UK company that developed this drug (which is now owned by ASTRA ZENECA) was also furious about this company policy. So breast cancer is not just about fighting for your life, it’s about fighting the politics and nasty policies that come with it.
Right now, I go back and forth between feeling anger, frustration, hope, exhaustion, and apathy.
But, I’m still going to China for Christmas because there’s no reason not too. As I find out more about this drug company stuff, I let everyone know so at least I can have my voice heard.